The ASH Research Collaborative (ASH RC) is a nonprofit organization established by ASH in 2018 to foster collaborative partnerships to accelerate progress in hematology and improve the lives of people affected by blood diseases. This two-part initiative consists of the Data Hub, a technology platform that facilitates the exchange of information by collecting it in one place and making research-grade data on hematologic diseases available, and the Sickle Cell Disease (SCD) Clinical Trials Network (CTN).
In this ASH RC Update Session taking place on Monday, at 6:15 p.m., in Room W207BC (map it) of the Orange County Convention Center, attendees will hear about the ASH RC’s progress and goals for the future. William Wood, MD, MPH, of the University of North Carolina at Chapel Hill, and Chair of the Data Hub Oversight Group, commented on what attendees can expect. “We are really looking forward to sharing our progress and engaging the hematology community during the ASH RC Update. The future of this project is exciting, and we welcome participation from the hematology community to help us build it together,” he said.
In the hopes of engaging the entire hematology community through the ASH RC, Dr. Wood explained that the session will benefit and welcomes participation from researchers, practitioners, patients, and all those who are affected in one way or the other by hematologic diseases.
While Dr. Wood will provide an update on the Data Hub, specifically technology and data set developments, Chair of the SCD CTN Oversight Committee, Charles Abrams, MD, of the University of Pennsylvania School of Medicine will provide additional details on the progress of the SCD CTN, including site selection.